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Inspirational former rugby star and motor neuron sufferer Rob Burrow has died aged 41


Inspirational former rugby star and motor neuron sufferer Rob Burrow has died aged 41.

The rugby player was diagnosed with the disease in 2019, just two years after ending his 17-season league career.

He won eight Super League titles with Leeds but dedicated himself to raising awareness and funding for the MND community after being diagnosed with the disease.

He did so with the support of former Leeds teammate Kevin Sinfield.

We pay tribute today. The MND Association said: “It is with great sadness that the MND Association has learned of the death of our Patron Rob Burrow CBE, four and a half years after being diagnosed with Motor Neurone Disease.

“Our thoughts today are with Rob’s wife Lindsey, children Macy, Maya and Jackson, family and friends and the rugby community.

Inspirational former rugby star and motor neurone sufferer Rob Burrow has died

Rob with his wife Lindsey before the Rob Burrow Leeds Marathon on 12th May

Rob with his wife Lindsey before the Rob Burrow Leeds Marathon on 12th May

Rob Burrow with his wife Lindsey (who ran the half marathon), daughters Macy and Maya and Kevin Sinfield, pictured a few weeks ago on the 12th.

Rob Burrow with his wife Lindsey (who ran the half marathon), daughters Macy and Maya and Kevin Sinfield, pictured a few weeks ago on the 12th.

«Rob, who played at number seven for Leeds Rhinos, has been living with this brutal disease in the public eye after choosing to announce his diagnosis shortly before Christmas 2019.

“He took every opportunity to raise awareness of the disease, speaking publicly, giving media interviews and opening up about his life in two moving BBC documentaries, My Year With MND and Rob Burrow: Living With MND.

“He remained a consistent and passionate advocate for people with MND – becoming the first person to use a communication aid to read a bedtime story on CBeebies. And he joined the United To End MND coalition, which successfully campaigned for a £50 million government investment in targeted MND research.

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“By doing so much, he inspired the support of many people. During the Challenge Cup Final weekend in October 2020, fans and supporters donated an incredible £70,000 to the MND Association. Just two months later, Rob’s former captain Kevin Sinfield CBE took on the first of four incredible challenges, raising more than £7 million for MND charities, including the MND Association.

“Rob and Kev’s friendship made headlines around the world. Thousands of supporters not only in the heartland of rugby but across the country who have donated, taken up fundraising appeals and pledged their support in tribute to Rob’s bravery.

“Rob’s contribution to rugby league and awareness of MND was recognized in the 2021 New Year’s Honors List when he was awarded an MBE and in the same year Rob accepted the role of Patron of the MND Association. Rob was subsequently awarded a CBE in the 2024 New Year’s Honors list.

“That support in his name has never wavered is a testament to the strength of people’s feelings for Rob.

«The MND Association is incredibly grateful to Rob and his family for helping to raise awareness of MND and funds for the Association by sharing details of their journey and inspiring so many in the MND community and the wider public.»



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